My husband quietly beats to his own drum. When we were dating he showed up at my house to pick me up for a date and had on a pair of jeans that he had worn so much that the thick hem of the jean had come undone and was hanging off the end of his pant about 5 inches. I instinctively did what my Mom would have done for me or one of my brothers if she saw us come downstairs with something hanging off of our clothes. I grabbed a pair of scissors and said, “Here let me get this for you.”
I realize we are just getting started helping our children and family as a whole unit live and succeed with chronic disease. We have definitely had more experiences in the hospital and at the doctors than an average family, but know there are other families that absolutely have had more experience than us. Watching each of our infants experience at some point an extended hospitalization left us feeling confused, afraid, lost, guilty, and often very angry. In the beginning I remember a toe to toe nose to nose discussion with one pulmonologist on call one day in the hospital with my 7 month old son (who heart breakingingly screamed bloody murder through every IV). The pulmonologist told me to “get used to this mom, you have to get used to this, you have children with a chronic disease you need to expect weeks in the hospital.” I was furious. I told her I refused to accept the hospital as normal and I refused to quit asking to go home as soon as we could as often as I could. She never came back to our room, and I never saw her again. She asked another pulmonologist to handle us (lets be honest me). I think I would like to let her know now that I apologize and I understand. I’m not happy about it, and it still feel angry about it a lot of the time but I understand that being intermittently hospitalized is part of my children’s life. We also understand that our emotions are second to helping our kids do their best to prevail with positivity and hope. Our attitude will be mirrored and magnified in them especially if it’s a negative one.
Tuesday, March 17, 2015
Embrace the Sentiment
My husband quietly beats to his own drum. When we were dating he showed up at my house to pick me up for a date and had on a pair of jeans that he had worn so much that the thick hem of the jean had come undone and was hanging off the end of his pant about 5 inches. I instinctively did what my Mom would have done for me or one of my brothers if she saw us come downstairs with something hanging off of our clothes. I grabbed a pair of scissors and said, “Here let me get this for you.”
I found your blog after someone forwarded me the writeup in LDS Living, and just wanted to pop over and say hello! I'm 26 with cf and the mama to one spunky toddler. Know that my prayers are with you guys (I'm LDS too)!
ReplyDeleteBy the way, I also curate a CF blogroll for bloggers who have CF or have family members with CF. If you're interested in being a part of that, info on getting your blog listed is here: http://cfblogroll.blogspot.com/p/how-to-get-your-blog-listed.html?m=1
Thanks for stopping by! I appreciate the info you gave me!
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