I realize we are just getting started helping our children and family as a whole unit live and succeed with chronic disease. We have definitely had more experiences in the hospital and at the doctors than an average family, but know there are other families that absolutely have had more experience than us. Watching each of our infants experience at some point an extended hospitalization left us feeling confused, afraid, lost, guilty, and often very angry. In the beginning I remember a toe to toe nose to nose discussion with one pulmonologist on call one day in the hospital with my 7 month old son (who heart breakingingly screamed bloody murder through every IV). The pulmonologist told me to “get used to this mom, you have to get used to this, you have children with a chronic disease you need to expect weeks in the hospital.” I was furious. I told her I refused to accept the hospital as normal and I refused to quit asking to go home as soon as we could as often as I could. She never came back to our room, and I never saw her again. She asked another pulmonologist to handle us (lets be honest me). I think I would like to let her know now that I apologize and I understand. I’m not happy about it, and it still feel angry about it a lot of the time but I understand that being intermittently hospitalized is part of my children’s life. We also understand that our emotions are second to helping our kids do their best to prevail with positivity and hope. Our attitude will be mirrored and magnified in them especially if it’s a negative one.

Monday, August 29, 2016

Bring on the Puke Cough


I had to jinx it and brag to a friend today that I didn’t clean up any puke today, so of course it didn't last. But at least the all to repeated experience this time of year inspired a lyric to a parody song to “Stand By You.”

Far better than a parody song is a husband who brings you towels to help mop up the puke mess and then folds the laundry while you do the dishes. Nice, very nice.



P.S. - Maybe someday I will think of the rest of the lyrics to this parody song. But in the mean time doesn't Frank look strong in this comic? I may have gotten the arm angle wrong on him a bit, but he definitely looks like a strong cartoon Frank, with no lipstick.

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