I realize we are just getting started helping our children and family as a whole unit live and succeed with chronic disease. We have definitely had more experiences in the hospital and at the doctors than an average family, but know there are other families that absolutely have had more experience than us. Watching each of our infants experience at some point an extended hospitalization left us feeling confused, afraid, lost, guilty, and often very angry. In the beginning I remember a toe to toe nose to nose discussion with one pulmonologist on call one day in the hospital with my 7 month old son (who heart breakingingly screamed bloody murder through every IV). The pulmonologist told me to “get used to this mom, you have to get used to this, you have children with a chronic disease you need to expect weeks in the hospital.” I was furious. I told her I refused to accept the hospital as normal and I refused to quit asking to go home as soon as we could as often as I could. She never came back to our room, and I never saw her again. She asked another pulmonologist to handle us (lets be honest me). I think I would like to let her know now that I apologize and I understand. I’m not happy about it, and it still feel angry about it a lot of the time but I understand that being intermittently hospitalized is part of my children’s life. We also understand that our emotions are second to helping our kids do their best to prevail with positivity and hope. Our attitude will be mirrored and magnified in them especially if it’s a negative one.

Monday, July 25, 2016

Heaven is Cheering You On!


When I finished reading this talk, my spirit soared. After reading it I knew that besides of course my family I would want Elder Holland to be transported in a golf cart every 3 miles along my hypothetical future marathon route. Hypothetical in that it would be a physical miracle if I ever did run a marathon. But if I did I would want someone to get this guy out there to cheer me on. Because I think with his powerful words of encouragement I could get through anything.

I was so excited after reading this INFACT that I skipped rough drafts and tracing boards and pencils and went straight for my brightest most powerful oil pastels to really get my feelings across. These are (in my home anyway, you can make your own choices of course) wall worthy words. So I say to myself, “pin this to the wall baby and let the power of the words and images that surround me in my home solidify the testimony I have and want my kids to have. Thank you Elder Holland!”






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