Not having the desire to eat isn’t anything I have experienced (even when I have a cold and can't taste anything I keep eating just in case I may catch some flavor). I enjoy eating. I am blessed to have food to eat when I desire to eat it. Some people, many children, definitely one of mine, do not enjoy eating. It has become clear to me that my own kid's lack of desire to eat is a real challenge for him. It’s a struggle. Every pain associated with his stomach, even the pain of hunger, seems to turn him away even further from the mental desire matching up to the physical actions of chewing and swallowing anything.
I realize we are just getting started helping our children and family as a whole unit live and succeed with chronic disease. We have definitely had more experiences in the hospital and at the doctors than an average family, but know there are other families that absolutely have had more experience than us. Watching each of our infants experience at some point an extended hospitalization left us feeling confused, afraid, lost, guilty, and often very angry. In the beginning I remember a toe to toe nose to nose discussion with one pulmonologist on call one day in the hospital with my 7 month old son (who heart breakingingly screamed bloody murder through every IV). The pulmonologist told me to “get used to this mom, you have to get used to this, you have children with a chronic disease you need to expect weeks in the hospital.” I was furious. I told her I refused to accept the hospital as normal and I refused to quit asking to go home as soon as we could as often as I could. She never came back to our room, and I never saw her again. She asked another pulmonologist to handle us (lets be honest me). I think I would like to let her know now that I apologize and I understand. I’m not happy about it, and it still feel angry about it a lot of the time but I understand that being intermittently hospitalized is part of my children’s life. We also understand that our emotions are second to helping our kids do their best to prevail with positivity and hope. Our attitude will be mirrored and magnified in them especially if it’s a negative one.
Sunday, November 15, 2015
How to Get My Kid to Eat, AKA, When the Circus Comes to Town 5 Times A Day
Not having the desire to eat isn’t anything I have experienced (even when I have a cold and can't taste anything I keep eating just in case I may catch some flavor). I enjoy eating. I am blessed to have food to eat when I desire to eat it. Some people, many children, definitely one of mine, do not enjoy eating. It has become clear to me that my own kid's lack of desire to eat is a real challenge for him. It’s a struggle. Every pain associated with his stomach, even the pain of hunger, seems to turn him away even further from the mental desire matching up to the physical actions of chewing and swallowing anything.
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