I realize we are just getting started helping our children and family as a whole unit live and succeed with chronic disease. We have definitely had more experiences in the hospital and at the doctors than an average family, but know there are other families that absolutely have had more experience than us. Watching each of our infants experience at some point an extended hospitalization left us feeling confused, afraid, lost, guilty, and often very angry. In the beginning I remember a toe to toe nose to nose discussion with one pulmonologist on call one day in the hospital with my 7 month old son (who heart breakingingly screamed bloody murder through every IV). The pulmonologist told me to “get used to this mom, you have to get used to this, you have children with a chronic disease you need to expect weeks in the hospital.” I was furious. I told her I refused to accept the hospital as normal and I refused to quit asking to go home as soon as we could as often as I could. She never came back to our room, and I never saw her again. She asked another pulmonologist to handle us (lets be honest me). I think I would like to let her know now that I apologize and I understand. I’m not happy about it, and it still feel angry about it a lot of the time but I understand that being intermittently hospitalized is part of my children’s life. We also understand that our emotions are second to helping our kids do their best to prevail with positivity and hope. Our attitude will be mirrored and magnified in them especially if it’s a negative one.

Tuesday, April 7, 2015

The Women Behind the Dolls

So this may have not been the "best" of the good, better, best ways to spend an hour of my evening - but I was so excited I had to play with Photogrid. A man in a Florida State shirt, who will remain nameless, helped me to finish 20 more dolls for this Saturday's event, bringing the total to 40! He traced 44 dolly arms, and 22 dolly heads, then stuffed them all for me so I could work on the other stages of the process. True love.
 
Without further delay here are the women behind the dolls. Or the dolls behind the women I guess...
 





 
 
 
 
 
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1 comment:

  1. CarlaApril 8, 2015 at 10:28 PM

    These are adorable Kamarah! I loved reading about the women behind the dolls!

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